Government unveils draft of rare diseases policy

poor people

The Government has released a draft Policy which proposes to provide one time treatment facility of worth Rs 15 lakh to poor people for rare disease.


The much awaited draft National Policy for Rare Diseases 2020 which has been put out in public domain, states that beneficiaries must fall into the category of government’s flagship Ayushman Bharat scheme to avail the benefits of the policy initiative. As per the report, the Ministry of Health and Family Welfare would provide financial support under its umbrella scheme Rashtriya Arogya Nidhi.

Around 40% of the country’s population will be eligible for getting money under the special fund.

Under the policy, the government also plans to notify certain medical institutes as Centers of Excellence for Rare Diseases including Delhi’s All India Institute of Medical Sciences and Maulana Azad Medical College, Chandigarh’s Post Graduate Institute of Medical Education and Research, Mumbai’s King Edward Medical Hospital, Lucknow’s Sanjay Gandhi Post Graduate Institute of Medical Sciences, and three others, says a MINT report.


“The financial capacity to support exorbitant cost of treatment, is an important consideration in public health policy development with reference to treatment for rare diseases. In resource-constrained settings, it is pertinent to balance competing interests of public health for achieving optimal outcomes for the resources allocated,” the draft policy said.

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