Health Policy

Court provides relief to Hemophilia patients

The Delhi High Court has given Hemophilia patients a reason to smile. Treatment for this inherited disorder that is costly and beyond the reach of a majority of those affected will now be provided free of cost at three hospitals in the capital. Acting on a Public Interest Litigation filed by the Hemophilia Federation India (HFI), which highlighted the absence of life saving mechanisms like drugs, as also awareness of the disorder and special care facilities for patients in Delhi. The Court has designated the Lok Nayak, Deen Dayal Upadhyaya Hospital and the Guru Tej Bahadur Hospital to provide free treatment to those who are below the poverty line as well as those who are in urgent need of medicines. Taking note of the necessity and urgency of the matter, a bench comprising of Chief Justice M K Sharma and Justice Sanjiv Khanna, appointed a committee, including Principal Secretary, Director General , Director of Health of NCT of Delhi, Secretary (Health) of central government as its members and J R Midha as convener, to monitor and redress all the grievances raised by HFI. Based on its action taken report, the court gave its order. “All Hemophilia patients belonging to families below poverty line will be supplied Anti Hemophilic Factor (AHF- a life saving drug) free of cost. In emergency cases also free treatment will be provided to all Hemophilia patients who come to the designated hospitals,” Justice Sharma said. When a normal person is injured his blood quickly clots to prevent further loss of blood. However, this does not happen in the case of those with hemophilia. The Anti Hemophilic Factor (AHF) that produces clotting in blood is not manufactured in the country but imported from abroad that makes it costly for the average patient.

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