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Govt Launches National Portal for Persons Living with Rare Diseases

National Policy for Rare Diseases 2021

The Department of Health and Family Welfare (MoHFW) has launched a digital portal for crowdfunding and voluntary donations for the treatment of patients of Rare Diseases in accordance with the mandate of the National Policy for Rare Diseases 2021, the Minister of State for Health and Family Welfare, Dr Bharti Pravin Pawar informed in the Rajya Sabha today. The digital portal may be accessed through https://rarediseases.nhp.gov.in/

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Also read: Government unveils draft of rare diseases policy

In another development, the minister informed that The Department of Pharmaceuticals has initiated the implementation of the Production Linked Incentive Scheme for Pharmaceuticals. The Scheme provides financial incentives to manufacturers selected under the scheme for domestic manufacturing of various product categories, which also include Orphan drugs. The guidelines for the Scheme are available on the website of the Department of Pharmaceuticals under the tab ‘Schemes’.

 

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