The Hemophilia Federation (India) (HFI) observed the World Hemophilia Day on Monday in the national capital.
To mark the occasion, the federation in association with Ministry of Health & Family Welfare, Government of India, conducted “ Initiative on Hemophilia Care III “ a sensitisation programme. It was aimed to create awareness about the Haemophilia at national and state level.
On the occasion, Vikash Goyal, president, Hemophilia Federation (India), said, We have tried our level best to involve as many stakeholders as possible from across the country so that we all can work as a team to take our movement forward which is care and solace for the people suffering with Haemophilia.
We are fortunate and grateful to the World Federation of Hemophilia (WFH) for their generous amount of donations of Anti Haemophilic Factor (AHF) which has helped us in emergencies, corrective surgeries etc, he added.
Goyal lauded the efforts of Dr G N Singh, Drug Controller General of India for the quick custom clearances of medicines donated by WFH.
The event organised at New Delhis India Habitat Centre was also supported by Baxalta Biosciences India Pvt Ltd, now part of Shire and Novo Nordisk India Pvt Ltd, leading pharmaceutical companies.
The ministry, along with its secretary, has invited all the state health secretaries and the mission directors. Prominent doctors, hematologists, physiotherapists and hemophilia caregivers also participated in the event.
So far Hemophilia Federation (India) has identified over 19,000 children and persons with Hemophilia (C/PwHs). However, the actual figure may be around 1.2 lakh considering the population of India.
The identification and diagnosis of the remaining sufferers can only be possible if there are enough trained Hemophilia doctors and testing facilities.